All Publications

A Multi-Institutional Cohort of Therapy-Associated Polyposis in Childhood and Young Adulthood Cancer Survivors
Prior small reports have postulated a link between gastrointestinal polyposis and childhood and young adulthood cancer (CYAC) treatment (therapy-associated polyposis;…
Health System Research Priorities for Children and Youth With Special Health Care Needs
Children and youth with special health care needs (CYSHCN) have, or are at an increased risk for, chronic physical, developmental,…
Factors associated with health psychology use in pediatric type 1 diabetes
For children with type 1 diabetes (T1D), self-management is complex and requires coordination between a child and his or her…
Investigating lupus retention in care to inform interventions for disparities reduction: an observational cohort study
Systemic lupus erythematosus (SLE) is an autoimmune disease that disproportionately impacts young women, patients of color, and the socioeconomically disadvantaged,…
Building Capacity for Dissemination and Implementation to Maximize Research Impact in a CTSA: The University of Wisconsin Story
The publication reports results of an 8-year process of stakeholder engagement aimed at building capacity in Dissemination and Implementation (D&I)…
Engaging Patients in Primary Care Quality Improvement Initiatives: Facilitators and Barriers
Health care transformation calls for patient engagement in quality improvement (PEQI), yet practice participation remains low. This pilot study of…
Broadening Medical Students' Exposure to the Range of Illness Experiences: A Pilot Curriculum Focused on Depression Education
Exposing medical students to a broad range of illness experiences is crucial for teaching them to practice patient-centered care, but…
Chemoprevention of Colorectal Cancer
Although colorectal cancer (CRC) screening has reduced the incidence of and mortality from CRC, chemoprevention strategies have the potential to…
Evaluating Integrated Care for Children: A Clarion Call or a Call for Clarity?
“Integrated care” is often used to describe concepts such as coordinated and seamless care instead of the often fragmented and…
Reliability and validity of PROMIS® pediatric family relationships short form in children 8-17 years of age with chronic disease
Families play a key role in managing pediatric chronic illness. The PROMIS® pediatric family relationships measure was developed primarily within…