Even with the addition of CFTR-modulator therapies in cystic fibrosis (CF) care, engagement in home treatments by persons with CF (PwCF) and their family caregivers remains key to slowing progression of CF-related complications. Effective clinical partnerships between PwCF/their families and clinicians are critical to developing feasible home treatments plans.
In this study from HIP Investigator Dr. Rachel Grob, a team of content and methodology experts conducted a grounded dimensional analysis of transcribed interviews from 20 clinicians and 7 parents of 9 children with CF to identify and describe social processes associated with a clinical partnership. The findings show that while parents and clinicians endorse similar philosophical principles of partnership, they differ in how they actually enact them, and transition to a partnership paradigm appears to remain a work in progress.
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